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SNOMED CT database successfully set up: Combination of experimentation, outdated advice found in grey literature, informal help from terminology expert colleague
Legacy codelists: Found 350 in multiple formats, little or no provenance or definition, idiosyncratic naming. All translated in batch via cross mapping tables. Resulting outputs used as substrate for full curation. Only 154 of these taken forward. Full curation typically added many extra active and inactive concepts
Infrastructure developed: Supporting:
Unique naming and numbering of ‘variables’ o Agreed editorial principles for naming o Recording of dates and names of curator and checker
Agreed metadata including output type, option for free text comment
Storage of ‘variables’ in supertype/subtype format
Generation of concept flatlists for searches on demand
Agreed curation process, making best use of supertypes that can be added or subtracted. ‘SNOMED CT helper tool’ developed. Curating team trained in its use. All ‘variables’ checked by second team member
Interaction with researchers.
Difficulties with:
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Shifting thinking away from fixed code lists
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Obtaining plain English definitions of requirements
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Matching requirements to existing ‘variables’/to identify gaps; help needed from curation team
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Explaining implications of inactivations
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Scepticism about re-usability
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